

Four years later
Getting ready for our interview with Caryn Schwartzberg, Brody the dog, and me. Four years ago, today, Pat and I heard the words, "We think your daughter has a disease called metachromatic leukodystrophy." It did not take us long to realize that the disease was incredibly rare and fatal. The best thing the young neurologist named Dr. Amy Waldman could do for us was "fast track" our Make A Wish vacation. But, in that meeting with Dr. Waldman, I asked her if she believed ML