Cal's Cupcakes Blog

Inspiration and Hope 

Four years later

Getting ready for our interview with Caryn Schwartzberg, Brody the dog, and me. Four years ago, today, Pat and I heard the words, "We think your daughter has a disease called metachromatic leukodystrophy." It did not take us long to realize that the disease was incredibly rare and fatal. The best thing the young neurologist named Dr. Amy Waldman could do for us was "fast track" our Make A Wish vacation. But, in that meeting with Dr. Waldman, I asked her if she believed MLD would be cured one day. Dr. Waldman answered, "yes, this is a disease we understand." "How long will it take?" I asked. Skeptical that such a terrible and rare disease could ever defeated. "I would say we are ten year

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