Many of you have helped support my family and I in the opening of the first Leukodystrophy Center in the United States. We cannot thank you enough for your support, both financially and emotionally. I wanted to update you on our accomplishments over the past 2 years and let you know about our next Gala. For those of you that attended our first Gala in May 2015, you know how great an event it was! Please note that we are not participating in the Philadelphia Auto Show Black Ti

Originally printed in The Mighty. In 2012, I went from being a soccer mom with a minivan to a recipient of public assistance. The fact that my husband and I held advanced degrees, earned salaries that placed us in the top 10 percent of the income distribution and had good insurance benefits from our jobs did not matter when our youngest child was diagnosed with a devastating neurological disorder. A medical catastrophe resulted in us becoming one of the millions of Americans