We were so pleased to work with the Washington DC based filmmaker Rachel Feichtner of Brave Girl Productions on this video titled "Reframing Hope." So many people have questions about what it means to care for a child with a life-limiting condition. We wanted to tell the story of Cal and her amazing nurses and care team so people could witness the beauty in her life. And for families facing a leukodystrophy diagnosis, the notion of working with hospice and palliative seems f