top of page
Mission
About Us
Board
What is Leukodystrophy?
Contact
Projects
Events
Videos
Get Involved
The Mighty
Team Cupcake
Cal’s Cupcake Challenge
Donate
Blog
Store
More
Use tab to navigate through the menu items.
CURES - COMMUNITY - CUPCAKES
Cal's Cupcakes Blog
Inspiration and Hope
All Posts
Search
Reframing Hope: Children's Hospice and Pediatric Palliative Care
We were so pleased to work with the Washington DC based filmmaker Rachel Feichtner of Brave Girl Productions on this video titled...
Featured Posts
How much would you pay for a miracle?
Augie's Story
The Fifth of July
A grandmother uses quilts to honor a child and give hope to families
Recent Posts
Inspirational Child with MLD, Calliope Joy, Passes Away
The grief of diagnosis
How much would you pay for a miracle?
Chan Zuckerberg Initiative showcases Cal
Cal's Cupcakes featured by Chan Zuckerberg Initiative
On the 7 year anniversary of Cal's diagnosis
Christmas Johnny
Founder Maria Kefalas addresses NORD Summit
Cal's godmother takes on the Philadelphia Marathon for kids with leukodystrophy
Augie's Story
Archive
March 2022
(1)
1 post
November 2019
(1)
1 post
August 2019
(4)
4 posts
December 2017
(1)
1 post
October 2017
(3)
3 posts
September 2017
(2)
2 posts
August 2017
(1)
1 post
July 2017
(2)
2 posts
June 2017
(1)
1 post
March 2017
(2)
2 posts
December 2016
(1)
1 post
October 2016
(2)
2 posts
July 2016
(1)
1 post
June 2016
(1)
1 post
May 2016
(3)
3 posts
April 2016
(1)
1 post
February 2016
(2)
2 posts
January 2016
(1)
1 post
December 2015
(2)
2 posts
October 2015
(1)
1 post
September 2015
(2)
2 posts
August 2015
(1)
1 post
July 2015
(3)
3 posts
Search By Tags
ALD. #SavetheBoys
(1)
1 post
FDA
(1)
1 post
Make A Wish
(1)
1 post
Medicaid
(1)
1 post
Partnership
(1)
1 post
The Mighty
(1)
1 post
children's hospice
(1)
1 post
gene therapy
(3)
3 posts
leukodystrophy
(4)
4 posts
newborn screening
(2)
2 posts
palliative care
(1)
1 post
pricing
(1)
1 post
terminal illness
(1)
1 post
Follow Us
bottom of page