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BOARD

Maria Kefalas - Pat Carr and family - Ca

MARIA KEFALAS & PAT CARR

Founders

Maria Kefalas and Patrick Carr, Founders. Ms. Kefalas is a professor in the Department of Sociology at Saint Joseph's University and the late Mr. Carr was an associate professor and director of the Criminal Justice Program at Rutgers University-New Brunswick. Both earned doctorates in Sociology from the University of Chicago. 

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TIM BLIAMPTIS, MBA

Advisory Board Member

Mr. Bliamptis is a Managing Director of Weathergage Capital, which he founded in 2006. He began his investment career in the Treasurer’s Office at the Massachusetts Institute of Technology, where he focused on the endowment’s venture capital investments. He holds degrees in Electrical Engineering from MIT and an MBA from The Wharton School, University of Pennsylvania.

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RACHEL KAISER, MD AND MPH

Advisory Board Member

Dr. Kaiser is a rheumatologist in private practice in the Washington D.C. area. Prior to focusing full-time on clinical practice, she was on the faculty of the Division of Rheumatology at the University of California, San Francisco (UCSF) where her research focused on genetic risk factors of blood clots in lupus patients.

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Amy Waldman, MD

Scientific Advisor

Dr. Waldman is Attending Physician, Assistant Professor of Neurology, Perelman School of Medicine at the University of Pennsylvania and serves as Medical Director of the Leukodystrophy Center of Excellence.


 

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JILL CAIRNS MILNE, PH.D

Advisory Board Member

Dr. Milne is the President and CEO of Catabasis, a Cambridge, MA based biotech.  Prior to founding Catabasis, Dr. Milne worked as the head of discovery biology at Sirtris Pharmaceuticals and a served as the worldwide head of the Drug Pfinder Program and head of the Enzyme Target Group at the Pfizer Discovery Technology Center. She holds a Ph.D. from Harvard University and a B.A. in biological chemistry from Wellesley College.

Every dollar matters to help families, improve care, and accelerate research that will cure leukodystrophies and related neurological diseases in the fast-approaching future.

 

The CJF is a registered 501c(3) with tax id no. 90-1005140.

TCJF Certificate of Registratio

View 501(c)3

Registration Certificate

TCJF 990 Form

View TCJF

990 Tax Form

TCJF 2018 Report
TCJF 2021 Financial  Report

2018-2019 Annual Report

2021

Financial Report

Cals Cupcake 5K
501(c)3 Status
Cal's Cupcakes | Nord Rare Impact Award

Maria Kefalas and The Calliope Joy Foundation 
are proud to announce that we are recognized for a

2018 Rare Impact Award from NORD. 

https://rarediseases.org/rare-impact-awards/

TCJF is a member of the National Organization for Rare Disorders
Nord-Logo---The-Calliope-Joy-Foundation
WE WELCOME YOUR DONATION
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