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In 2012, when we learned that our daughter Cal had leukodystrophy, the doctors told us it was too late to save her.  Three months later, Cal uttered her last word: "Daddy."  A year later, we learned about a remarkable new gene therapy that was making it possible for children with Cal's disease to walk, talk, and attend school. The moment our family realized that Cal's disease did not have to be fatal, we were determined to raise the money and awareness needed so other families would not have to stand by and watch children lose everything and then die.

With your help, Cal's disease will stop being a death sentence.


We hope you will join us in our fight to save thousands of children from Cal's fate.  With your gift, doctors will offer these miraculous treatments in the United States and wipe out this disease once and for all.

-Maria Kefalas and Pat Carr,  Cal's mom and dad and co-founders, The Calliope Joy Foundation

Please send check donations to the address below:


The Calliope Joy Foundation

PO Box 2866

Bala Cynwyd, PA 19004

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