Our Mission
Since 2013, we have sold 45,000 cupcakes and raised nearly a million dollars through Cal's Cupcake Challenge, The Cupcake Gala, the Cupcake Run, and with gifts from donors and partners. Our mission is to improve care, support families and champion research for families with Leukodystrophy.
The revolutionary and life-saving MLD gene therapy treatment, OTL-200, is scheduled for review by the FDA in March 2024, meaning that it soon could be available to MLD patients in the United States. With the potential FDA approval of OTL-200, the MLD community has hope for a brighter future where those affected by the rare disease get a second chance at life.
Join us in making a difference for MLD patients and their families across the country as we work to ensure that they can access this incredible treatment. Your support can make an impact by helping make this life-saving treatment accessible to those in need.
You Can Help
Our promise
Improved Care
We strive to provide improved care for families dealing with MLD and Leukodystrophy. Our dedicated team of professionals is committed to offering support and resources to enhance the quality of life for patients and their loved ones.
Fundraising Events
Join us at our annual Gala's, Cupcake events, and 5K races to support families affected by MLD and Leukodystrophy. Together, we can make a difference!
Research Advancements
At The Calliope Joy Foundation, we are dedicated to funding research initiatives that aim to find a cure for MLD and Leukodystrophy. By supporting groundbreaking research, we hope to bring hope and progress to those affected by these conditions.
We Have Launched & Funded
Leukodystrophy
Family Forum
Cure MLD
resource
Living with
Leukodystrophy
Supported
newborn screening
Travel grants for
patients
Provided care
packages
Produced video
resources
Published two
children's books
Our Sponsors
Homology Therapeutics | Tim Bliamptis and Jane Donaldson | The Muul Family | Gifts in memory of Patrick Carr | The Hamlett Family | Todd Milne and Jill Cairns Milne
